JUDD GREEDY MEMORIAL DAY
Judd Greedy Memorial Day in support of his mate Drew
When : Saturday, February 20, 2010 @ 5:00pm
Where : at the Telarah Bowling Club Clark St Telarah NSW.
About Judd
Sunday April 5 2009 – The day that rocked the world of all that knew & loved Judd Greedy. Our hearts and minds struggle to comprehend how the powers that be would take this extraordinary young man at such a young age and when the world was about to see what he had been working towards for almost half of his life.
It was all finally falling into place for him.
There will be a memorial day in Judd's honour. With the help of as many of Judd's supporters as possible it is going to be a double whammy! Anyone that knew Judd also knew that he was passionate about the people in his life and very generous with his time. He was always there to support anyone who needed it. One person who has always been special to Judd is his mate Drew. Drew suffers from Aperts Syndrome and in his 16yrs, has endured more than a lot of us could even comprehend! In the true spirit of Judd we would like to offer Drew a little assistance. With a little help from Judd's friends, we could not only have a evening to remember him, but also help out a mate.
There will be some entertainment and a BBQ and also somefundraising for someone special to Judd.
About Drew
Drew is 16 years old and his hometown is Newcastle NSW. Drew's interests are Bikes, Bikes & you guessed it more Bikes!
Drew has Apert Syndrome. Apert Syndrome is a genetic defect and falls under the broad classification of craniofacial/limb anomalies. It can be inherited from a parent who has Apert, or may be a fresh case. It occurs in approximately 1 per 160,000 to 200,000 live births. Apert syndrome is primarily characterised by specific malformations of the skull, midface, hands, and feet. The skull is prematurely fused and unable to grow normally; the midface (that area of the face from the middle of the eye socket to the upper jaw) appears retruded or sunken, and the fingers and toes are fused together in varying degrees. Apert syndrome is named for the French physician who first described it, E. Apert, in 1906.
Ideally, treatment of Apert begins at birth with the proper diagnosis, identification of the child's individual needs, and the proper facilities to administer what is needed. A multidisciplinary approach is used by physicians in the best arrangements. A craniofacial anomalies team may consist of a craniofacial surgeon, neurosurgeon, ENT, audiologist, speech pathologist, oral surgeon, psychologist, ophthalmologist, and an orthodontist. The team approach is used by these physicians to determine the best collaborative corrective plan for the deficiencies of the child.
There is no cure for Apert syndrome, but much can be done to prevent or treat complications and help the child grow as normally as possible. Any baby with abnormal features must be correctly diagnosed as early as possible to arrange the right sort of support and treatment. The child may need care from many different specialists over the years, including craniofacial surgeons, speech therapists and ophthalmologists. One important aim of the treatment is to prevent a build-up of pressure on the brain. Surgery is often needed early in the child's life to separate the skull bones and may have to be repeated. The shape of the skull and face may be remodelled to give a more 'normal' appearance. The fingers may be separated to improve hand movement and the toes separated if they interfere with walking. Drew has recently had more surgery.
For More Information on this event please contact: Tracey McDonald |
